Wish I Could Wave a Magic Wand

There are so many thoughts running through my head.

I've been asked to speak with a small group of Epilepsy Toronto parents tomorrow evening. They are parents of children, from one to 16 years, who have epilepsy.

Katie, the amazing Director of Children and Youth Services, and also a social worker, has asked me to talk about our journey with James, about coping skills for parents and about the sibling experience.

I have so much to share with these parents--I know their pain. I've been where they are. I hope one day soon that their child will be where our child is now-- seizure-free. I don't, however, want their children to have to go through epilepsy surgery six times, and struggle trying one hideous drug after another. I want to wave a magic wand and let all their children--let all the children in the world--be seizure-free. That isn't too much to ask, is it?

Until I find that wand, I'll share our stories, our hope, our pain and our triumphs. And, photos, I'll happily share photos...

James, three years old, at Sick Kids, days post-op from his first of six epilepsy surgeries. James, nine years old at Sick Kids Critical Care Unit (epilepsy surgery number four) with me reading the sports section to him.

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