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Lights, Camera, Action!

A few months ago we were asked to participate in a video for Eplink--The Epilepsy Research Program of the Ontario Brain Institute--about people who've had epilepsy surgery. Richard and I were eager to help out, but I wasn't sure James would be, as the interview was scheduled for June 19, his 30th birthday.

 "No problem," my generous son told me. "No better way to celebrate being 30 than by talking about being seizure-free."

 So, off we went to Toronto Western Hospital, the site of James's surgery, to be interviewed by Eplink's Dr. Amaya Singh. The focus at Eplink is to find new ways to diagnose, treat and improve the lives of people with drug-resistant epilepsy. It is a great organization and I love its vision: "A world without epilepsy." It was an interesting interview and Dr. Singh immediately put all of us at ease. As it concluded she said, "I know hearing your family's story will touch a lot of people." 

 The video has just been posted to youtube. There is a short version (18 minutes) and a long version (36 minutes). You can listen to both of them here. Enjoy!



Comments

  1. AnonymousSeptember 12, 2018 at 7:23 PM

    How truly beautiful that James was willing to share his life experience, and on his birthday... all of those medications, wow! You all spoke so well... what an insight into what James has endured. I love the vision... A world without epilepsy! I appreciate your share. Heart hugs of love for you all. xoxo

    ReplyDelete
    Replies
    1. NancySeptember 13, 2018 at 6:55 AM

      Hi Leanda! Thanks for your lovely message. Sending a big hug all the way to Australia for you. Hope you're back in Toronto soon; we all need a little more Leanda. xo

      Delete
  2. ARTSeptember 13, 2018 at 9:21 AM

    Thank you James for sharing your story, and your words of wisdom. Obviously you realized that epilepsy surgery was going to make a difference in your life, and it did!

    ReplyDelete
    Replies
    1. NancySeptember 13, 2018 at 10:55 AM

      Thanks, Art! We're so glad surgery has given James a new life.

      Delete

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