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Nights of Sharing


Do you have a child with drug-resistant epilepsy? Do not feel alone! 

For the first time ever, Epilepsy Toronto is offering Nights of Sharing, a four-part series aimed at bringing parents of children with uncontrolled seizures together to share, connect, empower and learn. The series is lead by parents, for parents.

Richard and I spearheaded the series along with Epilepsy Toronto social worker Katie Armstrong. We were at the Epilepsy Toronto Annual Meeting in May when a parent asked about support groups for parents of children with drug-resistant epilepsy. There wasn't one. So, I approached ET about starting a group. I'll never forget how much support, knowledge and encouragement I got from the Bloorview Group many years ago when my son was young and seizing daily. Now that James is seizure-free it’s time to give-back by helping parents who are where we once were. And so, after meetings and great direction from  Katie, Nights of Sharing was realized.

Some of the areas that will be explored during the four-part series are:

  • Resilience 
  • Empowerment
  • Advocacy 
  • Service and diagnostic navigation
  • Seizure management
  • Relationships, friendships and support 
  • Planning for the future. 

The first session will be held from 6:30-8:30 p.m. Thursday January 24 at the Epilepsy Toronto office at 468 Queen St. East, Suite 210. The other three sessions are scheduled for Thursday, April 26, Thursday, July 25 and Thursday October 24. Light refreshments will be served. To register, please email: katie@epilepsytoronto.org

If you know anyone who might benefit, please share this information with them. Thanks!


 

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